Deepest apologies for not having time to respond to comments, or emails, or reading and commenting.
We are in a holding pattern at the moment, trying to keep Michael stable while waiting for a heart transplant. On Monday after the heart cath showed a decline in heart function and the defibrillator implant was cancelled, he was doing pretty fair... considering. Monday evening he began having accelerated heart rate (atrial fibrillation) and required a shock back to normal. By Tuesday morning he had to have a balloon pump inserted, again. Now it's just a matter of keeping him flat on his back and comfortable, while waiting for a new heart. Medications have been a huge issue and the adverse reactions are touchy. Vomiting while you are flat on your back is no picnic. He's miserable and ready to be on the other side of this ordeal. We are, too. Everyone seems to think he will do well, if it doesn't take too long for one to become available. While it's sad to think that someone has to lose their life for him to have one, we will be beyond grateful for the chance to have a heart they will no longer need. (strange way to say that, but I'm at a loss for more sensitive wording)
We all thought we had received a miracle when he had the pump removed and appeared to be doing well. While that may not have been a long-lasting miracle, we will set our hopes on a new miracle and pray the good Lord sees fit to grant it.
Good thoughts and prayers are still greatly needed and very much appreciated.
Just in case I don't make it back to the computer in time for Christmas... MERRY CHRISTMAS TO EACH AND EVERY ONE OF YOU AND THANK YOU FOR THE SUPPORT YOU HAVE GIVEN US. BLESS YOU!
We are in a holding pattern at the moment, trying to keep Michael stable while waiting for a heart transplant. On Monday after the heart cath showed a decline in heart function and the defibrillator implant was cancelled, he was doing pretty fair... considering. Monday evening he began having accelerated heart rate (atrial fibrillation) and required a shock back to normal. By Tuesday morning he had to have a balloon pump inserted, again. Now it's just a matter of keeping him flat on his back and comfortable, while waiting for a new heart. Medications have been a huge issue and the adverse reactions are touchy. Vomiting while you are flat on your back is no picnic. He's miserable and ready to be on the other side of this ordeal. We are, too. Everyone seems to think he will do well, if it doesn't take too long for one to become available. While it's sad to think that someone has to lose their life for him to have one, we will be beyond grateful for the chance to have a heart they will no longer need. (strange way to say that, but I'm at a loss for more sensitive wording)
We all thought we had received a miracle when he had the pump removed and appeared to be doing well. While that may not have been a long-lasting miracle, we will set our hopes on a new miracle and pray the good Lord sees fit to grant it.
Good thoughts and prayers are still greatly needed and very much appreciated.
Just in case I don't make it back to the computer in time for Christmas... MERRY CHRISTMAS TO EACH AND EVERY ONE OF YOU AND THANK YOU FOR THE SUPPORT YOU HAVE GIVEN US. BLESS YOU!
37 comments:
i almost emailed this morning to check on you. i know this is terribly difficult for you to go through. i cannot imagine the prayers, the soul-wrenching pleas being sent into the universe for michael. add mine to yours. that is all we can hope for.
My prayers continue; I'm grateful Michael has such a loving family and many friends at this time. God bless him, and you my friend.
xoxo
Glad to hear from you--although I can understand how hard it is to write. I have been praying for Michael--and for you and the family. I can only imagine how hard this is on everyone. God Bless You all---and when Michael gets that new heart, you all can have the best Christmas celebration ever.
Hugs and loads of Prayers,
Betsy
My thoughts and prayers are with you and your family. I hope you get your Christmas miracle.
Keeping you and Michael close in my thoughts and in my prayers!!!
Cindy
My heart breaks for all of you ... you feel things so deeply, and I know what this is doing to you.
Organ donation is the ultimate gift. I pray that Michael receives his second-hand heart soon. Sending love to all you you.
I've been thinking about you. Stay strong, sweetie, and I'm keeping you all in my thoughts and prayers.
Still praying for all of you, especially for a new heart. You are in our thoughts often.
Our prayers are being sent your way continuously; much love to you from all of us.
Michael is in my prayers...I hope this ordeal is behind him soon- and I want to wish you all a blessed Christmas...sending virtual {{hugs}}
I've been thinking about you both! You will all remain in my prayers.
God Bless your Michael.
hugs,
Marie
I've been thinking about you and hoping you'd post an update. I'm sure he's sick of being sick and my hope and prayer is that he gets that new heart soon and is on the road to recovery.
Well I have nothing more to say then these wonderful girls - but add me praying - hoping - wishing he will get a new heart soon. He looks tired of fighting and I know you are too. I will pray! sandie
I'm so sorry that Michael is having a rough time. I think of him now and then and say a little prayer. Best wishes to both of you.
Fingers crossed for a Christmas miracle...wishing you and your family all the blessings of the season.
I am hoping for a miracle, too. I wish I could offer more.
(((hugs)) to your whole family.
ah no I wish Michael was heading into Christmas in a better situation, this is such a shitty place to be at any time of the year...we join the wave of hope and prayers for him...xxoo
I pray for You all! Sending angels and strength, You are in my thoughts this Christmas. Love.
You are in my thoughts. Wish you all the best. Still praying for you all.
I had been thinking of you and of Michael so much. Seeing him on that hospital bed hooked up to everything is really sad. Praying for a miracle in this kind of situation is a double edged sword. You don't want to pray for somebody to die, but you kind of need to... if you want your son to live. That's being between a rock and a hard place, and is a true test of faith and love. Keeping you all in my prayers. And Happy Holidays, Mrs A... have as merry of one as you possibly can in this position.
What words suffice? That you and Michael, that all of you are in my prayers, always have been, always will be and to have faith he will receive his heart…God Bless, Merry Christmas, and prayers for that Happy New Year for ALL OF YOU! LOVE, LOVE, and a bit of a broken heart…
chana
I am so sorry that Michael is not doing well. I definitely have special prayers for him and the family at this time! Sending hugs along to you, as well as special Christmas wishes. Nellie
Sending you all hugs and prayers
This poor guy. He has been through so much, I hope he keeps up his positive outlook and I, like all your readers and friends, want to know of any changes yet I know you hardly have time to post updates. My heart hurts for you as a mom and I send you hugs and of course prayers for you and Michael.
I'm Wishing You a Blessed Christmas and hopes and prayers for the New Year that Michaels needs will be met. Thinking of you this morning and saying my Christmas prayers for you all : )
i've been thinking of you, and praying for all of you.
you are in my thoughts this christmas and always in my heart.
((((hugs))))
p.s. wishing and hoping he will get a new heart really soon!
You put it very well, Ms. A - and I hope you all receive your Christmas miracle. Sending healing thoughts and prayers your way -
Please don't worry about replying . I will continue to pray for Michael and your family. Merry Christmas to you too.
Oh Ms A---I am devastated for you and your family. I hope all goes well---I will pray for you...and Michael. Hang in and think only positive thoughts.
When he gets his new heart it will be your Christmas miracle.
Our family spent last Christmas in the hospital, but you guys have hope--hang on to that.
Don't worry about replying, but I do look forward to your next post and you are all in my most sincere thoughts and prayers.
White healing light sent to you all day and all night.
I do hope the new year means a new heart for your boy. xo
I'm still sending good thoughts and prayers your way!
I think of you and Michael many time a day and am holding you both in my heart. All blessings...
Oh, Ms. A., I've been out of touch, swept up in my own family issues, and had no idea he was back in the hospital. I'm so sorry Michael is having to go through this (and also you!) He will be in my constant prayer. Hugs to you!
Oh honey! I haven't been on Blogger lately. Saying prayers for Michael to get a heart ASAP!
(((HUGS)))
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